Gemeinsam gegen PPMS e.V.
Gemeinsam gegen PPMS e.V.
Herzlich willkommen auf unserer Webseite, die eine wichtige Mission verfolgt: PPMS-Patienten eine bessere Zukunft zu ermöglichen. Heute rufen wir Sie dazu auf, Teil unserer Spendenkampagne zu werden und einen Geldbetrag Ihrer Wahl zu spenden. Mit Ihrer Großzügigkeit können wir bedürftigen PPMS-Patienten helfen, die dringend eine autologe Stammzelltransplantation (aHSCT) benötigen, aber nicht über die finanziellen Mittel verfügen. Außerdem bekommen Sie die Möglichkeit, durch einen variablen Jahresbeitrag passives Mitglied zu werden und Neuigkeiten immer als Erstes zu erfahren. Sprechen Sie uns dazu gern an!
Gemeinsam gegen PPMS e.V.
IBAN: DE73 4015 4530 0052 7132 94
Sparkasse Westmünsterland
@gemeinsamgegenppms
Selbstverständlich erstellen wir Ihnen eine Spendenquittung, wenn Sie uns Ihre Kontaktdaten mitteilen.
Our approach is to not only support PPMS patients financially, but also to empower them to help themselves. We would like to show you how you can plan and carry out your own crowd funding to cover part of the therapy costs if necessary. Together we want to create financial security for those affected, be it through donations or the participation of health insurance companies and private health insurance companies. We would be happy to support you.
We know that dealing with health insurance companies and private health insurance companies can often be complex and challenging. We therefore offer patients information and assistance on how to structure correspondence in order to have the best chance of receiving support. It is important to us that PPMS patients have the best prospects for the health insurance companies to participate and thus experience financial relief. Talk to us about this.
Another important aspect of our fundraising campaign is the support of the aHSCT Task Force of the KKNMS (Multiple Sclerosis Competence Network). This is committed to standardizing aHSCT therapy for MS in Germany and thereby enabling even better access for those affected. With your donation you will help us to take a significant step towards improved care for MS patients.
Your donation will have a transformative impact on the lives of PPMS patients. Every amount, no matter how small, can make a big difference and give hope. Your support will help ensure that people facing the challenge of PPMS have a better quality of life and a chance of recovery.
Your donation and commitment are invaluable to people affected by Primary Progressive Multiple Sclerosis (PPMS). Every euro brings us closer to our goal - a better future for PPMS patients.
Your generosity is a ray of hope and supports the important work of the KKNMS Task Force aHSCT. Together we create change and give hope!
Help us – donate today! Your contribution changes lives and enables better care for MS patients. Your donation is a valuable step towards a more hopeful future for those affected by PPMS.
December 29, 1978
Schlitz near Fulda, Hesse, Germany
Married (since 2009), 2 children (daughter 2012, son 2015)
Received in 2007
Minor improvements experienced, but no major progress (yet).
In a wheelchair for about ten years.
Welcome to my blog! Here I would like to share my personal experiences and travel stories with you after going through the HSCT treatment. You will gain insights into my personal experiences before, during and after therapy.
37 years young
married, 2 children (6 and 3 years old)
PPMS, initial diagnosis April 2022, walking distance at that time: unlimited
Successful fundraising campaign via GoFundMe, currently in legal dispute with the health insurance company
In this blog I take you on my journey through life with PPMS. I will share with you my personal experiences, thoughts and emotions during my therapy and beyond.
46 years
Married, 2 children (14 and 17 years old)
Running (3-5x/week, hobby runner, marathon), bike, soccer, gym, lots of exercise to balance out the office and car-heavy job
Sometime in 2016; Stumbling and falling during long runs in the forest of 25 km or more. Suddenly small stones, roots or bumps became a problem. The last time I tried running/jogging was in 2021 and got 2 km.
July 2022 (Deaconess KH Mannheim). Walking distance at the time of diagnosis: approx. 4 km
In this blog I will share with you my experiences, thoughts and emotions during my trip to Mexico and my aHSCT treatment. You will gain insight into everyday life before and after the transplant, experience my ups and downs, and hopefully gain inspiration and courage as you overcome your own challenges.
Thank you for accompanying me on this journey. Let's explore the world of aHSCT together and celebrate the positive changes it can make in my life and perhaps in yours too.
